Useful links
There are many organisations who are ready and able to help with all your questions and queries about living life with a stoma, as well as other related issues. Here are a few links that may interest you, although this is by no means a definitive list.
Useful links
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Beating Bowel Cancer
Beating Bowel Cancer are dedicated to saving lives by working in partnership with individuals, local communities, clinical communities and government to improve public awareness of bowel cancer and to increase the rate of early diagnosis
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Bladder and Bowel Foundation (UK)
The UK's leading charity providing information and support for people with bladder and bowel control problems, their carers, families and healthcare professionals.
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Bowel Cancer UK
Bowel Cancer UK aims to save lives by raising awareness of bowel cancer, campaigning for best treatment and care and providing practical support and advice.
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Breakaway (UK)
The UK's only weekend activity breaks designed for young people with bowel or bladder dysfunctions, and their families.
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Colon Cancer Coalition (US)
A non-profit that oversees the continued success of its Get Your Rear in Gear events nationally, and promotes awareness and raises funds to fight colon cancer.
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Colostomy Association (UK)
A registered charity representing the interests of people with a colostomy.
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Crohn's & Colitis Federation of America
A non-profit, volunteer-driven organization dedicated to finding the cure for Crohn's disease and ulcerative colitis.
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Crohn's and Colitis (UK)
Crohn's and Colitis UK brings together people of all ages who have Crohn's disease or ulcerative colitis, their families, and the health professionals involved in their care
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Crohn's Zone
A support community for people with Crohn's disease and ulcerative colitis.
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European Ostomy Association
A not-for-profit and a non-governmental organization for ostomate associations all over Europe, North Africa and the Middle East.
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Gay and Lesbian Ostomates (US)
A support group for gay/lesbian and bisexual ostomates, their partners, family, caregivers and friends.
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Get Your Guts in Gear
An independent, national, not-for-profit organization that raises awareness of Crohn's disease, ulcerative colitis, and related conditions through multi-day cycling events.
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IA - The Ileostomy & Internal Pouch Support Group (UK)
A registered charity whose primary aim is to help people who have to undergo surgery which involves the removal of their colon and the creation of either an ileostomy or an ileo-anal pouch.
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Ideas Kids
Addresses the unique needs of children and teens facing intestinal disease, and allows users to connect with other young people with IBS, IBD, Celiac and GERD.
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International Ostomy Association
An association of ostomy associations committed to the improvement of the quality of life of ostomates and those with related surgeries worldwide.
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Macmillan Cancer Support (UK)
A charity that provides practical, medical and financial support for people affected by cancer.
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Ostomy Lifestyle (UK)
Provides support, advice and information to anyone affected by stoma surgery on their bowel or bladder.
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Ostomy Wound Management
This small journal dramatically expanded its content and readership by embracing the overlapping disciplines of ostomy care, wound care, incontinence care, and related skin and nutritional issues and became the premier journal of its kind.
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Stoma Data
A resource aiming to provide practical information for colostomates, and to a lesser extent ileostomates and urostomates.
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The Gay Ostomates Organisation (UK)
News, help, information, services and advice for anyone with an ileostomy, colostomy or urostomy.
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The Gut Trust (UK)
The national charity for Irritable Bowel Syndrome.
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The Kingston Trust (UK)
A registered charitable trust, whose aim is to provide assistance for elderly ileostomists experiencing financial hardship.
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UC and Crohn's (US)
A place where teens with ulcerative colitis or Crohn's can learn and connect with others who share their stories and experiences.
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United Ostomy Associations of America
A national network for bowel and urinary diversion support groups in the United States.
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Urostomy Association (Great Britain and Ireland)
National charity dedicated to the support of people with a urinary diversion.
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Wessex Urology Support Group
A local voluntary group of urostomy patients providing a local support in Wessex and Hampshire.
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Young Ostomate & Diversion Alliance of America
Provides both community and resources to young adults with ostomies, diversions, or those preparing for a similar surgery.
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Youth Rally (US)
A summer camp operated by the Youth Rally Committee (YRC) that helps teens who have a bowel or bladder dysfunction or ostomy prepare for independence and build a personal network.
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Travel:
The British Airports Authority
Aerospace Medical Association publications list - tips for airline travellers
International Medicine Center -
Forums
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